Hi, everyone. Thanks so much for your comments over the past month or so, since our baby girl was born. After her birth, I hadn't posted because we were just so overwhelmed as first time parents with caring for our beautiful baby girl. Now, unfortunately though, I haven't posted because we are currently living in the hospital because our six week old daughter is fighting late onset Group B Strep bacterial meningitis. We were moved out of the ICU late Saturday night and are now on a main floor in neurology.
It started on a Monday three weeks ago. It was my first day home alone with her after my Mom had stayed with us for a week and then my Grandmom had visited the week before and I was so excited to have a day for just the two of us. Unfortunately, it quickly turned into the worst day of my life.
The day began like any normal day with her feeding around 9-something in the morning. But afterwards, she began screaming, which I thought was gas since we had been having problems after recently supplementing her feedings with formula to help her gain weight. The day progressed from there through what I now know are all the symptoms... not feeding, going limp in my arms, grunting, mottled skin, and eventually a fever. I knew in my gut that something was wrong, but when I had called her doctor's office, the receptionist didn't even put me through to a nurse or doctor. She just made it seem like I was just a typical first time Mom and everything was fine. They recommended gas drops for her and my husband had picked some up on his lunch break and planned on bringing them home after work.
When things got worse later in the day and I knew that something was absolutely wrong, I rushed her to her doctor's office 5 minutes away (this after I wasted 30-60 min's trying to get through their phone lines which were busy). I'll always regret not trusting my gut.
I got there and they took one look at her and told me to go to the emergency room. Since my husband and I had recently moved to the area, I didn't even know how to get there. The doctor started giving me directions. Thank God that a nurse had the common sense to offer to drive me there. She began arguing with me about her wanting to drive me, since I was upset - again wasting more time. I didn't want to waste even a second in having to switch the car seat to her car, so I finally got her to agree that I would follow behind her instead.
A lumbar test in the Emergency Room was cloudy and immediately they knew it was likely meningitis. My husband rushed there from work and together we were brought up to the pediatric ICU with our baby girl weak in my arms. We spent the night thinking she would get better there. She was still sucking on her binky, eyes were periodically opening, and she was still making noises. Things went downhill fast though.
She began having seizures and the night just got worse and worse. They had to put her on a ventilator and began preparing her for transport. A helicopter crew came and took she and I to the National Medical Center at Children's Hospital in DC. They couldn't have both of us fly in the helicopter, so my husband rushed over by car. We believed that we were being sent to the next hospital for a surgery to drain the swelling and fluid from her head. Instead, we arrived and they got her started on antibiotics.
We're going on our third week here and in that time, she has been fighting this infection and has suffered severe brain damage after the infection spread so rapidly through her blood and brain.
She had started opening her eyes last Friday and they were weaning her off of the ventilator. She took a turn for the worse that weekend though and they think that it was because she tired herself out from breathing so much on her own. They also then had to put her back on some of the medications that make her sleepy.
On Wednesday, October 28th at about 12-1 pm, her breathing tube was taken out. She let out a small cry and has been breathing on her own since. She's been breathing on her own since, and we're praying that she'll continue gaining her strength back. She's been doing well and now the speech therapist is working with us and we'll soon begin trying to teach her to take a bottle again.
We continue praying, hoping, and waiting... please pray for our baby girl as she continues her fight. We have many challenges and hurdles ahead and we and the doctors have no idea how the brain damage will affect her. We just have to wait and see, which is especially hard for me. I'm learning to try to be more patient and we continue our prayers for continued improvement in her health.
*** For those with young children or who are about to have a baby, please read about the symptoms at the link below so that you'll recognize them if this ever God forbid happens to your child. Do not waste time at home waiting to see if things get better or by going to your pediatrician's office first. You NEED to get to the ER immediately. http://www.groupbstrepinternational.org/info_main.html I tested negative for Group B Strep during my pregnancy and never realized that this could be a risk after her birth, so be aware so that you can recognize it if it happens to you. ***
Please pray for our baby girl.
5 days ago



Please have them contact me for more info and I'd be happy to share more details. Hope everyone had a great weekend! : )
...along with this cute area rug.
I can't wait to add these curtains:
I switched from the Walmart Baby Mod crib I had picked out to this Dwell one at Target (which is $50 cheaper):
To which I hope to add, this crib sheet:
And maybe this dust ruffle: 

Which would make it look something more like this:


I also have a bunch of these orange and pink wood frames left over from our wedding for a project for the baby's room. I have enough to do the alphabet and am thinking about doing printed letters A through Z to hang on the wall together or trying to get each of our family members to hold up a printed letter and take a photo of them to frame. Since our family members all live more than 3-4 hours away, thought it'd be nice to have family pictures in the baby's room.
That's it for now... I can't wait to get started!

{Photo Credit: Aimee Herring}










